Never a Dull Trip

Today B and I embarked on an adventure.  Ok so it started out as just a trip to Lincoln, NE for her six month brace check.  Sounds simple right?  How quick you forget NOTHING is simple when Missy B is involved.

We started out bright and early this morning.  I wanted to be on the road by 5:30 (we had an 8:30 appointment) but when you have to pack, check the vehicle, wake a girl, dress a girl, shower and get yourself ready, and not necessarily in that order, things don't always go the way you hoped.  So our adventure started at 6:15 instead.  Yes this meant I was going to be late already.  Not a huge deal, but a deal none the less.  After we counted kittens to make sure we didn't have any hitch hikers we were on our way.

Drove until we reached Columbus and then decided a stretch break/bathroom break was necessary.  I bought myself some Clarkson Bakery Kolaches and something for both of us to drink.  There was a sippy cup with a straw in the van so I put some pop in it for B.  (Let me note:  I DO know that this can be a disaster but so can a whole bottle of pop being turned upside down while a girl giggles.  Yep been there done both.)  Off we were again. 

After about 15 minutes or so of driving I hear giggles from the back seat.  I look in the rear view mirror and I see Mt. Diet Coke raising up from between the seats. "I ain't got time for this!"  I thank God that it is DIET coke and won't leave a huge sticky mess everywhere and just keep driving, just keep driving.

Diet Coke Splatter on the area where the DVD player is.

Another photo of the Diet Coke lava.

We continue on to Lincoln pretty much incident free.  (I'm sure something probably happened but my brain blocked it out to protect itself.)

We could not find parking on the first level of the parking garage and I had to go up to 2nd floor.  Now I really don't like parking garages (too much freedom and fresh air growing up I guess) and really hate when I have to go up levels.  The drive down isn't much more enjoyable either.  But this was different than what we usually do.

We go to get on the elevator and a little lady is now questioning where we are and what we may be doing here.  It really hit her when we got off at the main level and began walking into the hospital.  She has NEVER refused to walk into this building before and I had to put on the Autism Mom detective hat and think why now?  I finally concluded that every hospital has the same smell (basically) and she must be scared there is going to be a repeat of the "break fluid" incident which meant she was poked every 4 hours.  She is now throwing herself on the floor, screaming and crawling slowly toward me.  I knew if I tried to pull her it would make it worse so I was slowly walking down the hall and she was coming closer as she doesn't want to loose mom here.  

God sent us an angle at this point in the form of Wendy one of the Ortho people we work with on B's brace.  She went over to B, who looked up and smiled at her, and talked to B.  She was able to get B up off the floor and walk down the hall holding both of our hands.  This was such a lifesaver.  We both assured her there would be no pokes on this visit.  Wendy needed to go help another patient and left us promising B a huge hug if she was good the rest of the visit.  (She did follow through!)

We then went and checked in for our visit.  B was cooperative by this point because she new this place and this routine.  Then it was time for x-ray and we fell to pieces again.

First they had to take us to a different area in the hospital for x-ray than B was use to.  (Let's face it we do this every 6 months so she knows how this works.  In fact it seems like we get a new Shriner to escort us every  time, and when I say new I don't just mean to us I mean they have never done this before so we lead him.)

Now we are waiting in a tiny waiting room with 3 other patients, their Shriner and their parent or parents.  B was very uncomfortable.  We get called back for the x-rays and I'm thinking this is getting better now.

Oops spoke too soon.  She did not want to cooperate.  She stepped up on the stand like this was going to be ok and then turned into a HUGE rag doll.  After struggling to get her to stand again they decide I need a lead vest.  I'm thinking, "I don't care let's just get this done!!!"  They gown me up and another helper, go to take the x-ray and THE MACHINE DOESN'T WORK!!!!!  Ok reset the machine, let's try it again.  NOPE!!!!  After 4 reposing/resetting/mom ready to scream-at-the-top-of-her-lungs attempts for an x-ray they ask us to step outside and wait in the hall while they try to figure it out.

Thank goodness for ipads and Jessie to get through all this.

So we are now sitting in the hall way for about 5 to 10 minutes.  No one is going in or out of the room, I can hear them talking in there, and other patients are in and out of the other x-ray rooms nearby.  B is now starting to scream, which really echoes in hospital hallways BTW, and I'm about reduced to a puddle of tears.  Finally someone comes and says they have the machines ready and running in the area we usually go to they are going to take us over there.  REALLY!!!!!  Gather all our stuff (almost forgot B's shoes) and off to where we usually go.
There we are pretty much taken right back and the x-ray is done in one shot!  (She knows what to do here.)
Now we wait in the lobby with all the others to see the Doctor.  This was only about 10 minutes or so.  I really don't know as she decided it was time for a pants change and that seems to take forever anyway.  LOL

Clown in training.

I wish she would have turned around, she was really cute, but B wanted nothing to do with her.

We now are taken to a room to wait for the doctor.  They tell me it's Dr. Guidera and I'm thinking yeah right.  Dr. Guidera is the very first Doctor we dealt with in Minneapolis.  He is the doctor that looked us in the eyes, oh so long ago, and told us we would be running after her in the halls someday.  He holds a very special place in our hearts.  But we were told he moved to Florida.  Ends up he was there, I asked another person about it and they told me he likes to meet them, when he can, at out reach clinics.  It was WONDERFUL to see him again.

This was the stool in the room we waited to see the doctor in.  All I could think of was Twilight.

Once again the iPad was a lifesaver!!!

I tried to find the last x-ray so you could see the difference, but no luck.

The doctor did give us some good news (the one bright spot in the day).  Making sure her brace is tight made all the difference.  Last time the doctor (a different one) was starting to talk surgery as the curves were measuring over 30 degrees each in the brace.  This time we were at 17 degrees and 20 degrees much better and no more talk of surgery!!!!  THANK YOU GOD!!!!!
We also saw Wendy and Tim who thought the brace looked good, gave us a few more pointers on wearing it and taking care of it.  Also took her insert from one shoe so they could build it up as it was wearing out already.
We LOVE our Shriners.

She wore herself out!  (BTW this is very unusual.  She hardly ever sleeps in a vehicle or during the day even.)

On the way home I decided to take a break in David City and visit the cemetery where my grandparents and uncle are buried.  I did not realize that Grandpa passed away so close to my Birthday.  I really need to make note of these dates better.  

I also stopped at my cousin's house (Deb Dinkelman).  My other cousin Dan's daughter was home visiting after being in Germany in the service for a number of years.  I was able to meet her husband Kenny and see their daughter Bailey again.  Her life is so blessed and I was honored to spend some time with all of them.  

Breanna did not want to get out of the van at her house (a different place than she was use to again).  It wasn't too cold or hot and I kept looking out the window checking on her.  When I got in the van I could smell something (perfume) and could not place the smell.  I knew it was something I had smelled before, but could not place it.  But we were on our way and I just wanted to get home at this point.

Just after we went through Columbus B hands me a diaper.  She wanted to be changed.  I told her we would stop in the next town.  So in Humphrey I stopped to change her pants.  There I discovered the source of the odor.  She had found (who knows where) a very small, thank goodness, bottle of Polo.  Let me tell you it smells WAY better on the men in my house than on my van.  Also, due to a "recall" on the switch to the vent windows of the van they are disabled and I couldn't open a window to air it out a bit.  I'm just glad it wasn't a bigger bottle or a bottle of something that I couldn't stand.  

As I said this may not be all that happened, but my brain may have blocked out some things to protect my sanity.  It just seems that when it rains it pours or in my case floods.

When we leave the Shriners they always have us do an exit survey.  I told them I would pass this time.  They were a bit concerned, but I assured them that all the things I had issues with were things they didn't have any control over.  (Mostly the x-ray equipment) I didn't want my issues to be reflected as anything they did or didn't do. All I can do is pray next time will be better.

I Am So Proud!!!

Reid

Breanna

I'm so sorry if you don't want to read something sappy and a mother bragging, please go to a different blog.  I just hope that some day my not-so-little-anymore man and not-so-baby-anymore baby-girl will read this and realize how proud they have made me to this point and I'm sure beyond.

When I first held each of them my brain could not handle nor could my dreams ever be big enough to even touch what has happened and continues to happen on a daily basis with these two.

Let me start with my not-so-little-anymore man.  Last night he became, what I would consider, an adult in the Catholic Church.  Last night, looking through tears, I watched my little boy be confirmed.  

It was beautiful.  I really LOVE how the bishop smiled at him.  (He did it with every child, but it meant a lot to this mom.)  I am so proud of the fine young man that God has blessed me with.  Now I'm not saying my son is a saint, and he tests my ability to ever become one sometimes too, but when I have others tell me what a fine, kind, caring young man he is I want to melt into a puddle.  I have prayed every day, since I found out God was gifting us with a child, that my child would be kind, and caring.  God has defiantly heard that prayer.  I know we have a long way to go, but I know we are on the right track.

I am also blessed that I don't really need to worry about his grades.  God gave him a very gifted brain, when it wants to be.  LOL  I wish I would have been able to get the grades this young man does.  He needs to work a bit, but for the most part things come very easy to him.  I know I let my guard down too often on this front with him, but I rest assured he will correct what needs to be quickly. 

Lastly I am so blessed that he loves his little sister as much as he does.  It doesn't always show, especially when she breaks his favorite thing or runs off with his DS, but it shows when needed the most.  Every time I have been concerned about Breanna's health or we have had to run her to the Doctor in an emergency he has shown such love and compassion for her I could burst with pride.  I know if something happens to me he will be right there to take my place and watch out for her.

Reid, thank you for being the best son I could have ever asked for!  You don't know how many times my heart expands with pride for you!  You are everything I have ever asked for or dreamed of in a son!  Please know that I love you and am VERY proud to call you my son!!!

The other person in my house that I am sooooo proud of is Missy B!!!  Even though she has not met as many milestones as her brother she has overcome soooo many obstacles I don't know where to start.

Let me just encompass all of them by saying....I am so proud she has figured out her own way to let me know some of the things she needs/wants.  She will bring me what she wants to eat or drink.  It breaks my heart to tell her no, but I don't want her to learn she will get everything she wants.

She amazes me with her ability to know who will accept her and who will turn her away.  She is also quite funny when she sees someone outside of the normal environment she sees them in it will throw her off a bit, but she soon is smothering them with hugs and kisses.  I soooo enjoy watching her grow and learn.  

I really love seeing her learn new things.  She is amazing with how she overcomes the things that get in her way.

I am so proud she so somewhat independent.  I am proud that she is mobile and can be (kind-of) trusted with some freedoms.  I love that is so soooo free with hugs and kisses!  I can't wait to see what God has in store for her!!

I am so proud to call these two my children.  God has given me a blessing that I will always be thankful for and never take for granted.  I am praying that they continue to grow in faith and knowledge every day.  

I am a very emotional person and when you ask me about my children I may have tears in my eyes, but they are tears of pride!  I will admit I cried last night and will definitely cry at whatever the next big milestone is for either of my children.  Just have a box of Kleenex handy for me the day that Missy B makes her first communion.  Heck have a whole CASE for me that day.  That is my next big step with her and I will fight with all my might to make that happen!  (Darn it I'm starting already!! LOL)

I can't end this without at least mentioning that I have one other child I am proud of.  That is my miscarried child Danny Chris.  I am so proud that God gave me the blessing of bringing a soul to life even if I never got to hold, or kiss Danny.  I know that Danny is helping his/her brother and sister more in heaven than they ever could have here on earth.  I know that Danny is who is praying the hardest for his/her mommy and daddy to have enough strength, patients and faith to take care of his/her siblings.  Thank you Danny and I am proud of you as well.  You get to see God, Jesus and Mary every day.  Be ready to introduce me to them when I get there too.

God please bless all my children with strength for their days, peace for their nights and faith in You to get them through everything!!!